Saline Therapy; the First Two Weeks

saline therapy for dysautonomia the first 2 weeks by @sarahfrisonhc

Did you know you can select any sentence in this post & share it? It’s pretty nifty, if I say so myself :). Give it a go.

Hi there!

This might be an odd first blog post but, hey, everyone’s got to start somewhere. It was either this or a post on gluten-free pizza.

If you know me you might have heard that I was recently diagnosed with something called dysautonomia. POTS or (here we go) ‘Postural Orthostatic Tachycardia Syndrome’ to be exact. The good news is that, unlike my previous diagnoses, there actually are treatment options available.

Enter saline therapy

It’s pretty much giving a liter of saline through an IV over a couple of hours, sometimes vitamins are added as well. Research has shown it helps dysautonomia patients with low blood pressure, heart rate fluctuations, and hydration.

I asked my PCP and he agreed it was worth a shot. I’m getting one liter a week, for now. He comes over to hook me up and I take out the needle myself (go me!). My stomach was upset for about 24 hours after, I’m not sure if that’s related or just a coincidence. I’ve noticed that I do feel better for several days after the IV. My blood pressure doesn’t drop as much either.

iv-picture

I have fickle veins so my doctor decided to use a butterfly needle. The second time around it hurt a lot because it’s a real needle whereas normal infusion needles are a bit of plastic. We might give a normal IV needle a go next time. For now, I can’t cook when I’m getting the iv, so I’m figuring out what gastroparesis-friendly foods I can have for dinner that only require one arm.

me-my-iv2

It’s not a permanent fix (after all you do pee out the saline after a while) but for now it’s helping me feel better and that’s worth quite a bit.

Sarah

6 Replies to “Saline Therapy; the First Two Weeks”

  1. Wishing you well as you begin this treatment, I’ve been getting hydration infusions for almost two years. And as of June, am now hiomebound and get one liter daily. I have an infusaport due to lack of venous access (bilateral kidney auto-transplants used up my veins). Hydrstion infusioms are not usually the first line of treatment, at least for me they were not. But if I’ve learned anything about Dysautonomia and the many sub-categories like POTS & NCS (Neurocardiogenic Syncope which I have) is that every patient differs with symptoms and treatment. Good luck and hang in there!

    1. Thank you for taking the time to comment, Kim! I’ve written a bit more about my saline infusions here & here. I’ve been getting a litre a week & it’s made a big difference for me.
      Was it hard for you to get the port? My doctor isn’t approving one for me yet.

Leave a Reply

Your email address will not be published. Required fields are marked *